Thursday, June 3, 2010

The Unstoppable Force and Traveling Abroad with Ulcerative Colitis


(At the Tower of London circa 2007)


I mentioned in a recent video that I will be traveling overseas to England very soon. Yes, this is true! I have been very fortunate to have traveled a lot. And guess what! I've done virtually all of my exploring with Ulcerative Colitis!

There are very few trips I have taken before I was diagnosed with Ulcerative Colitis. The one I remember best was the time I vacationed in Italy. This was a few years before the demise of my health. Back then I was not showing any symptoms, so I relaxed and ate whatever I wanted. I still remember the taste of chocolate gelatos and ham paninis! I was optimistic that this was the beginning of something great! Wanderlust creeped into the soles of my feet. I knew that this is what I wanted to do. I wanted to see the world. I would save money, and when I had enough I would spend it on adventures!

Then everything changed.

Two years after I went to Italy, I was starting to show signs that something was wrong. I kept quiet because I thought the symptoms would go away on its own. It escalated into my first major flare-up. After an official diagnosis, the future was bleak. How can I plan the future when I couldn't even plan my day? If a day is interrupted by urgent diarrhea 6-10 times daily... how can I fathom the idea of traveling abroad? In my case, I think it was a miracle, stubbornness, or maybe a little bit of both. My first trip abroad with Ulcerative Colitis was to Tokyo, Japan. And guess what, I was flying to a country where I didn't know the language or anyone there... all by myself! Crazy!

I somehow won a free trip to Japan. Back then, it was one of my biggest dreams to travel to Japan. I've taken a class on far Eastern civilization and also a short course in Japanese Language I. I know it wasn't enough to prepare me for a trip, but it was enough for me to know that my interest in Japan goes deeper than I originally thought. I'm fascinated by the culture and I love the rhythmic sound of the Japanese language. My dream was coming true and I didn't want to pass this opportunity! I know I would have regretted it! So you know what I did? I simply WILLED myself to get better. Its crazy, but that is the only explanation I have. Ok... maybe it was also the strong prescription medicine I had at the time. But I did it! When I think back to that time, I'm even shocked that I was able to plan everything by myself. I am invincible!

I believe that there is a lot of power in being stubborn. People will tell you to turn the other direction, but stubbornness will allow you to bust through walls. Then you can tell those nay-sayers, "HA! Well I showed you! Losers!"

A wise man once said, "With great power comes great responsibility". Ok that line was from Spiderman, but they are still wise words nonetheless. What I'm trying to say is that stubbornness has power, but it also allows for stupidity. Given the circumstances of my trip to Japan, there was so much that could have gone wrong and I wouldn't have been able to ask for help. I was lucky that everything went smoothly.

Let's fast forward to 2010. I am leaving for England very soon. My approach to traveling is different from my previous trips. Now that I have more experience, I don't allow myself to depend on stubbornness. I depend on meticulous planning and "feelings". I'll explain through a few examples and tips I learned:

1. If you are sick or have a "bad feeling" that you will get sick, than don't travel. There are no exceptions to this rule. I know I won't have a good time if I'm sick. Its not worth all the stress and the possibility of risking my life.

2. Don't get sick! A few weeks to even a month before my trip, I take extra care of myself. During this time I go on the introduction diet of the Specific Carbohydrate Diet. I know that these foods are safe and the "results" are predictable. And when I mention "results" I'm referring to bowel movements. I know I'll be doing a lot of walking during my trips, so I have an exercise routine to build up my stamina. I try my best to sleep early because immunity is effected if you force yourself to stay awake past your bedtime. I know these things should be done every day, but we live busy lives and sometimes we neglect ourselves.

3. The first you should pack is your medication so you won't forget it. I always pack extra pills just in case. You never know what will happen. Actually, I might get stuck in England for a few days if the Icelandic Volcano continues to act up! Its one less thing to worry about if you know there is extra medicine on hand. Being on vacation means that your normal schedule gets disrupted, so its very important to also take them on time.

4. Bring your own food! At least in the beginning of your trip, you can control your food and have predictable "results". You never know what the food is going to be like in another country. If you can eat familiar foods at least in the beginning of the trip, than you'll less likely run into problems. The day before the trip I am going to be boiling eggs, steaming carrots, and grilling turkey burgers. I am also bringing packets of dried fruit. Kat, a fellow blogger, recently took a trip to China and had excellent tips on how she prepared for her trip. A lot of the things she did were similar to how I prepare. However, I picked up the tip about bringing the wax covered cheese. I really like that idea!

5. When you are at your destination, stock up on food that you know you can eat and carry it around. I have been to England before and I made frequent stops at markets, particularly a place called Tesco. I would often buy salads and fruit to snack on.

6. Just because you are traveling to another country, it doesn't mean that your disease will behave. An illness is a part of you and doesn't care if you change your location. It will act up if its triggered. As much as I would like to eat exotic things and foods that a place is famous for, I have to follow my diet. Traveling is a wonderful thing to do, so experience everything as a whole. Your vacation doesn't have to be centered around food. Don't cheat on your diet! You'll want to have happy memories when you visit a place, not "OMG! I had the worst flare up when I vacationed in _______". Go sight-seeing, take photos, and buy souvenirs instead!

7. If it can be helped, don't vacation too long. Being away from home makes it hard to control your food. I like to vacation between 4-8 days but no longer than that. I don't know about you, but even if I didn't have an illness, a two week vacation just seems too long to me. I would rather have shorter, frequent trips. That way, the year doesn't seem so exhausting while you're waiting for your "one big vacation". Shorter trips means you have more events to look forward to!

8. I believe that it was food that ruined my life, but it was food that also saved me. That said, there is one last tip that I have. When you get back home, go on the introduction version of the Specific Carbohydrate Diet again. I feel that this can "undo" any damage that the unfamiliar foods might have done.

With these steps, I traveled around the world and I didn't let my disease stop me. So if you're thinking about taking a vacation, I think you should! But do so only when your health is stable and after careful planning.

Thursday, May 20, 2010

Paying it Forward

I have a friend who I've gotten to know pretty well over the past year. I've discovered that she's been struggling with her weight for years. She's a very sweet girl with big expressive eyes. She's quiet, but those eyes "talk". Its hard to hide your emotions with eyes like that. I can tell that she's unhappy with her weight.

Last year she moved away from home and everything she knew and had to make all new friends. I'm sure it must have been difficult for her to adjust. Besides her, everyone within our circle of friends are considerably thin. I only started to notice this when we went out to eat on New Year's Day. Everyone got sandwiches. I ate a salad. And she ordered a chocolate pancake with chocolate chips with whipped cream and butter and syrup! Boy was I jealous! I would trade places with her in a heartbeat if I could eat that! But anyway... after the meal, she started to fill with regret and then later felt sick. A couple of times after that outing, it was the same thing, she would eat sweets for dinner. I know she doesn't do this all the time, but it was worrying. I couldn't be quiet anymore. I had a feeling that she wanted to eat better but just didn't know how. So I offered to help.

I'll tell you a secret. I was never a skinny girl. Before I was diagnosed with Ulcerative Colitis, I self proclaimed myself the "Queen of the Buffet". I love to eat! Going to the all you can eat buffet is an event! I would wear my roomy "fat pants" and take in three plates of food. Everything was my favorite, especially junk food. I have been guilty of eating pizza, hot pockets, microwave burritos, left over Chinese take-out, or even ice cream for breakfast. It wasn't all the time, but it was enough to know that it was a very bad habit of mine.

I lost all of my weight from horrible bouts of diarrhea due to Ulcerative Colitis. Which might, in a sense, be considered cheating. But because of my new dietary lifestyle with the Specific Carbohydrate Diet. I haven't gained back the unwanted pounds and I've been able to keep my weight stable for three years. This tells me that I'm doing something right! If I had never gotten diagnosed with Ulcerative Colitis, I probably would eventually be diagnosed with a heart condition or diabetes at the pace I was going. I know I would have gone from overweight to obese because my weight wasn't going down. Only on the up, up, up!

If you see as you see me now, its hard to believe that I've ever been heavier. I went to a wedding a few months ago. It was almost a reunion for me because the last time anyone saw me was before I had gotten sick. I was a chubby kid then. My pant size used to be 9 or maybe 11. Now I fit comfortably into a size 4 and sometimes a 2. The guests at the wedding almost couldn't recognize me. I didn't want to tell them that I've been sick. Instead I told them, "I turned into a Swan".

My friend gladly accepted my offer to help. She was shocked to find out that I too struggled with weight. I didn't want her to feel alone. I would be a bad friend if I knew how to eat healthy and didn't share what I know.

Part I: Writing things down.
We started with a food diary. I asked her to write down everything she ate for two weeks so I can evaluate how she's eating and what we can change.

I've discovered a few things about her:

1. She never skips breakfast.
2. She eats healthy when she tries, but she doesn't try every day.
3. She's addicted to candy. I was mortified that sometimes she would eat candy for breakfast or dinner.
4. If only she drank water the way she drank soda...
5. She knows how to cook.
6. Although she knows how to cook, my friend and her boyfriend would frequently eat fast food because they don't know what to cook.

I've found a lot of parallels between her diet and my "old diet". I used to be just like her. I would try to eat healthy, but would gladly eat junk food instead.

Part II: The Science of H2O
For the next week, I asked her to only drink water or tea with no sweeteners. She started well... but unfortunately it was a losing battle. We're still working on this.

Part III: Finding things that are green
The most valuable information that I found from her food diary was figuring out what she likes to eat and what her favorite flavors are. Diets are already hard and I don't believe that a person should deprive themselves of things that they like. It gets discouraging to keep working without a reward.

Without a doubt, I know she likes sweets. So I needed to incorporate some of her favorite flavors into healthier choices. I went to her house and took a look in her refrigerator and cupboards to see what we can work with. She had some basic things to work with, but it was time to get some supplies.

I took her to her local Farmer's Market. She told me she's never been to a Farmer's Market before! I was happy to introduce her to one. Its a magical place! Not only are the fruits and veggies fresher, they are cheaper too!

1 bunch of spinach
1 huge Spanish onion
1 carton of grape tomatoes
1 bag of baby carrots
2 cartons of blueberries
1 head of broccoli
1 bunch of grapes

total = $10.37

If we bought the blueberries at a regular grocery store, the two cartons of blueberries would already cost us $6.

Also, I don't even think my friend and her boyfriend could get 2 extra value meals from McD's for $10.37. Junk food may seem cheap, but it actually costs more money than its worth. What I'm trying to do is to show her how easy and exciting it is to get healthy food. She loved being at the Farmer's Market. She was taking in all the smells and colors and picking things up. I don't know about you, but there's something pleasing about being hands on with your food.


Part IV:
Let's Cook!
We headed to her place and I showed her how to make a few simple dishes.

This was our menu:
Spinach and Cheese Puff
Broccoli Coleslaw
Pineapple Cheesecake

She absolutely loved the Spinach and Cheese Puff!

I'm not putting her on the Specific Carbohydrate Diet. Unlike me, she can still eat her brown rice and her wheat breads because her intestines aren't messed up like how mine are. I'm not forcing her into my mold. This isn't what its about. I'm trying to have her make healthier choices with a little help from me.

Its a rough beginning, but I think she'll do fine. I got her excited about taking responsibility over her own health. When you have that kind of passion, its hard to take it away.

She's already looking forward to finding recipes on her own and making substitutions. I have high hopes for her.

Wednesday, May 19, 2010

World IBD Day and CONTEST! --CLOSED--

Hey Everyone with IBD! Guess what! We have our own Day now! How cool is that? This means that our community is getting recognized! Maybe we'll be closer to finding a cure! If you are not familiar with IBD it stands for "Irritable Bowel Disease" and it is as uncomfortable as it sounds! Everyone with an illness struggles, but not all illnesses make you struggle with shame! Who wants to be the one to admit that they farted? Or wet their pants with diarrhea? Not I, and I'm sure you wouldn't. This is the silent struggle that people with IBD are suffering from. I'm sure everyone in their lifetime has experienced diarrhea, but try to imagine having diarrhea FOREVER! It sounds absurd, but its true. Unfortunately, IBD is virtually unknown because everyone keeps it a secret. A shameful secret. Recently there have been a lot of exciting medical advances in the world of IBD and with your help, there may be a cure within this generation!

May 19, 2010 is the first World IBD day! This is a huge step forward for the IBD community! We are slowly getting recognized and at a global level too. In celebration of this day, I decided to spread awareness by hosting a contest to raise money for the Crohn's and Colitis Foundation of America (CCFA).



Super cool prize to the person who donates the most money to the organization that I am supporting Crohn's and Colitis Foundation of America.

Level 1 prize: If I receive $20 in donations or more, you'll get a super neato heating pad that is handmade by me.

Level 2 prize: If I receive $40 in donations or more, you'll get a Pocco Revoltech action figure! (This prize is not suitable for children under 10 years of age. There are lots of small pieces) OR a heating pad. Its your choice.

One prize will be given to one winner!

Rules:
1. Must be 18 years or older of have permission by a parent or guardian.
2. Contest open to U.S.A. only. No exceptions!
3. Donate online http://online.ccfa.org/goto/fernpixel
4. When you donate, make sure that you put your name or a name that I can identify you with on the donation form. Nicknames are ok! (do not donate anonymously, or else you will be disqualified from the contest)
5. Email me with the name you used for the contest and the amount that you donated. Please do this right after donating, this is to verify who you are, and also I'll be able to contact you if you win!

for more information on World IBD Day, check out the official site: http://ibdday.bvsalud.org/

Crohn's and Colitis Foundation of America:
http://ccfa.org/

Friday, April 30, 2010

Coconut Flour!

I recently ordered from Tropical Traditions and it arrived yesterday! I'm so excited! I heard that coconut flour results in a really fluffy consistency, very much like white flour. I was never a fan of almond flour, so I'm extremely happy that this may be a substitute that may actually agree with me.



Check it out! Tropic Traditions has some really great deals and reasonable shipping rates, plus they are fast!

www.tropicaltraditions.com

By the way, this post wouldn't be possible without Kat. She was the one who introduced me to coconut products. She has a pretty nifty food blog. So please be sure to check her out too.

Thursday, April 29, 2010

Its sad being sad

Sunday, March 28, 2010

SCD Butternut Squash Fries

This is one of my favorite recipes! Very delicious, and a healthier choice than traditional fries! Its savory and slightly sweet. I love using this as a side dish for turkey burgers.

This video is actually a re-make. I wasn't happy with the original video because at the time I was just starting out with YouTube and didn't feel like I planned my cooking videos well enough. I've been meaning to do this for a long time.

What got me to do this was that a few people asked to feature my cooking video on their websites but I had my pet rodents in a blooper section! I adore my pets, but rodents + food isn't exactly a recipe for success. Its kind of gross actually. If you've ever seen the movie "Ratatouille" you'll know what I mean. I look back and laugh at my amateur attempts at video blogging. I'm still an amateur, but a little more conscious when it comes to showing food. ;)

So here's the new version with complete instructions and rodent-free! hahhahaha



For kicks, this is the original video. I will be taking it down sometime in the future.



The complete recipe came from a book called Eat Well Feel Well
by Kendall Conrad

Friday, March 19, 2010

Crohn's & Colitis Foundation of America Event!

They guys! There's a really cool event happening at the end of the month that I don't think you should miss. Its completely free and you can watch it from home :)

Check it out!



Breakthroughs in IBD Research: Helping You Today

Date: Tuesday, March 30, 2010
Time: 1:00 PM Eastern (10:00 AM Pacific)

Breakthroughs in IBD Research: Helping You Today

Join this FREE live teleconference/
webcast to hear nationally recognized expert Stephan R. Targan, MD, discuss research advances in IBD and participate in an interactive question-and-answer session.

I am not affiliated with the Crohn's & Colitis Foundation of America. I was not paid to make this video. This video reflects my own opinions.

To register for the event please use this URL:
www.ccfa.org/webcasts/research

Crohn's and Colitis Foundation of America official website
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