Thursday, February 26, 2009

blood and guts?

I can't find my journal at the moment... I'll post those retro entries when I find it. haha!

Wednesday, February 18, 2009

Some symptoms return

This sure is an unwelcome surprise... I'm going to play it safe and eat boring food till I get better.

Wednesday, February 4, 2009

RETRO 11.30.2005

Hey guys, another update from meee! haha! I'm so proud of myself about being good about posting on Wednesdays. Now I just gotta get back into making videos and we're all set huh? A quick note about this next Retro entry. I refused Remicade back in 2005. I have never taken it in my life. It was recommended to me at one time because my doctor is very impatient and only wants to see quick results. He wouldn't hesitate to switch my medication. Every time there is a new drug he brings it up and wants me to try it even if I'm on remission. I don't want to be a test subject. If I had taken his advice, I would've gone from Asacol, to Colazal, to Remicade, SURGERY, and now there's a new one that they asked if I wanted to try. I forget what its called but it starts with an "L" and the dosage is only once daily. His reasoning is, "its better because you just have to take it once so you won't forget to take your pills". I'm not going to take a drug just because its more convenient for my lifestyle. What if one pill is more potent than the 9 pills that I already take? Please remember: this is MY body!

Just because a drug is new, it doesn't mean that its better. Besides, back then I didn't really have a choice. Without insurance I could barely afford anything so I put all my effort into the drugs I was already taking and the Specific Carbohydrate Diet. Luckily it works for me.

And on a personal note. I hate my doctor. He's a turd. I need to find a doctor that I'm comfortable with. Are there still doctors like that? I don't want another person that is quick to give me pills and send me away. I want someone who actually cares to see me get better.

Retro 11.30.2005
Ok… I did some research on a new medication that they might start me on. I don’t know… I don’t think I want to do it. With every new medicine that is tried on me, I just get progressively worse. I stopped my very first medication because my hair was falling out. That was a bad idea because a few months down the road, stopping my maintenance drugs and a bad diet landed me in the hospital. I switched doctors and was put on even more medication. At one point I was taking thirty pills a day! It was so awful. I felt terrible all the time. Now I’m only on one drug and my hair is falling out again!

The doctor wants to start me on monthly Remicade injections that will cost $4,000+ for each injection. The side effects include certain cancers, pneumonia, liver damage, tuberculosis….

The treatment is probably worse than the disease! I think I’ll take my chances going bald. I’ll stick to the diet I’ve been on for months now too, that seems to be working and the only treatment that I can trust.

Most of all, I have to stay positive, but its getting really hard to do so…
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