Friday, August 20, 2010

The CCFA has an online "library"

Hi All!

I have something exciting to share! The CCFA contacted me with some amazing news! They now have an online library of their brochures which are free PDFs to download! I've attended a couple of public seminars in the past to see some speakers talk about different issues regarding people with Ulcerative Colitis. At the end of each session, they always have a lot of helpful reading material to take home. Since everyone isn't able to attend the meetings in person, its nice of the organization to make this information available to everyone online. And if you prefer the hard copies, they're willing to ship them to you if you request them. I think this is wonderful! And guess what! Its free!

The brochures range in topics from fact sheets on Ulcerative Colitis, Crohns Disease & IBD to specific aspects of living with such conditions such as diet, emotional factors, surgery, pregnancy, guides for teens & kids... you name it! Its probably there. I have a lot of reading to do! I'm definitely going to download them!

Many thanks to Ariella Levine and the CCFA for continuing to raise awareness and build this community with grace and understanding.

Please read the press release below for more details about the library and where to download the brochures:

PRESS RELEASE

FOR IMMEDIATE RELEASE


Crohn’s & Colitis Foundation of America Expands Library of Patient Materials. Updated brochures offer the latest on Crohn’s disease and ulcerative colitis


New York, New York—August 20, 2010—New information on the diagnosis of, treatment for, and research on Crohn’s disease and ulcerative colitis is rapidly growing. These chronic and often debilitating digestive diseases affect 1.4 million Americans. To help connect the Crohn’s and colitis community with this new information, the Crohn’s & Colitis Foundation of America has introduced a new brochure, Understanding IBD Medications and Side Effects; and has updated, Living with Crohn’s Disease; Living with Ulcerative Colitis; A Guide for Teachers and Other School Personnel; and A Guide for Parents.

“We are always looking for ways to introduce pertinent information to the public,” says Kimberly Frederick, Vice President of Patient & Professional Services at the Crohn’s & Colitis Foundation of America. “With the help of our newest brochures, we hope to provide patients, caregivers, and family members with the latest on Crohn’s disease and ulcerative colitis so they can most effectively manage life and take charge of their disease.”

Understanding IBD Medications and Side Effects helps patients learn as much as possible about life with Crohn’s disease and ulcerative colitis and goes into depth on medications that control these diseases. Since Crohn’s disease and ulcerative colitis are lifelong illnesses, treatment with medication is the first therapeutic option.

Living with Crohn’s Disease; Living with Ulcerative Colitis; A Guide for Teachers and Other School Personnel; and A Guide for Parents; were all recently updated to capture the latest information in disease management and treatment. Both Living with Crohn’s Disease and Living with Ulcerative Colitis offer information on the diseases and allow readers to really grasp the causes, symptoms, and side effects of living with Crohn’s and colitis. The brochures discuss establishing a patient-doctor relationship; commonly used medications; disease management; and more. A Guide for Teachers and Other School Personnel provides these role models with a basic understanding of Crohn’s disease and ulcerative colitis and describes some of the challenges that pediatric patients may experience on a daily basis. It provides teachers and other school personnel with strategies that they can use to help guide children with Crohn’s or colitis so that they can achieve their full academic potential. Key points about Crohn’s and colitis and what to expect is explored in A Guide for Parents. This brochure includes valuable information on lifestyle modifications Crohn’s and colitis patients and their parents may need to make, and how to maintain a progressive relationship with their child’s health care providers and school personnel.

In addition, translated Spanish versions of the Foundation’s flagship brochures, Living with Crohn’s Disease and Living with Ulcerative Colitis, are coming soon. To access the brochures online, visit http://www.ccfa.org/info/brochures/.

About Crohn's Disease & Ulcerative Colitis
Crohn's disease and ulcerative colitis are medically incurable illnesses that attack the digestive system. Crohn's disease may attack anywhere from the mouth to the anus, while ulcerative colitis inflames only the large intestine (colon). Symptoms may include abdominal pain, persistent diarrhea, rectal bleeding, fever and weight loss. Many patients require hospitalization and surgery. These illnesses can cause severe complications, including colon cancer in patients with long-term disease. Some 1.4 million American adults and children suffer from Crohn's disease or ulcerative colitis, with as many as 150,000 under the age of 18. Most people develop the diseases between the ages of 15 and 35.

About the Crohn's & Colitis Foundation
The Crohn's & Colitis Foundation of America's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. The Foundation ranks third among leading health non-profits in the percentage of expense devoted to research toward a cure, with more than 79 cents of every dollar the Foundation spends goes to mission-critical programs. The Foundation consistently meets the standards of organizations that monitor charities, including the Better Business Bureau's Wise Giving Alliance (give.org) and the American Institute of Philanthropy (charitywatch.org). For more information, contact the Foundation at 800-932-2423 or visit www.ccfa.org. Join CCFA on Facebook at http://apps.facebook.com/supportccfa/ and follow CCFA on Twitter at www.twitter.com/ccfa.

MEDIA CONTACT:
Ariella Levine
Crohn’s & Colitis Foundation
646-943-7430
alevine@ccfa.org

4 comments:

黃英吳思潔吳思潔邦 said...

河水永遠是相同的,可是每一剎那又都是新的。........................................

Willow said...

hi fernpixel, thanks for this info. I have a lot of reading to do, too!

明RoseH_Huls中 said...

好的部落格就要和好朋友分享--感謝分享..................................................

Mrs. Ed said...

I've put up a SCD/GAPS for the Holidays page for everyone to put links to holiday recipes. I hope this will help everyone find plenty of SCD recipes, especially those who are new to the diet. If you want to add any links of your great recipes: http://mrsedsresearchandrecipes.blogspot.com/2010/11/scd-for-holidays.html

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